About Us

What is the Spina Bifida Association of Delaware Valley?

The mission of the Spina Bifida Association of Delaware Valley (SBADV) is to build a better and brighter future for those impacted by Spina Bifida. We are a 501(c)(3) Non-Profit Organization serving Pennsylvania's Bucks, Chester, Delaware, Montgomery, and Philadelphia counties as well as the counties of Gloucester, Camden, and Burlington counties in New Jersey. To find out more about our programs, please visit our programs page. For the latest information about the association, check out our newsletter or visit our facebook page.

Our Goals:

1. To foster and promote the human rights and well being of all people having the condition known as spina bifida and hydrocephalus.
2. To promote research into the cause, improved treatment and prevention of spina bifida and associated defects.
3. To promote, encourage, and stimulate the care, treatment, education, socialization, vocational development, and normalization of persons with these conditions.
4. To promote the training of competent personnel to aid in the treatment, care, education, adjustment, and rehabilitation of persons with these conditions.
5. To promote public awareness and action by initiating efforts to inform the public about spina bifida and associated defects.
6. To receive by gift, device, bequest, or otherwise money or other property, or any estate therein, legal or equitable, and to hold the same and expend, contribute, disburse, and otherwise handle and dispose of the same for the promotion of the foregoing purposes.
7. This organization is dedicated to exclusively educational and non-profit purposes of the above mentioned activities and no substantial part of the activities may be to influence legislation by propaganda or otherwise.

Board of Directors

Meghan Timko, Co- Chair
Gemma Herman, Secretary
Amanda Kenyon, Treasurer

James Beardsley
Caitlin Chasar
Meredith Fitzgerald
Desiree Heller

Staff

Alicia Alphonse, Executive Director